Our Disease Expertise: How We Work
Our Centre has a sterling track record in both research and clinical care delivery. This is across a wide range of rare diseases.
Robust patient cohorts
We have honed our knowledge and our clinical services across decades. We have built robust patient cohorts and learnt from these individuals and their families to:
- initiate and advance research into rare diseases
- identify 'what works', in terms of slowing decline and boosting patient outcomes. And to improve quality of life
- translate this expertise to our clinics
European Reference Network success
'Success in the European Reference Network (ERN) story shows the quality of our rare disease clinical services and research. Newcastle established and led three ERNs:
- rare liver diseases
- rare neuromuscular diseases
- rare immunological, autoinflammatory and autoimmune diseases
This was more than any Centre anywhere in Europe. Our teams also participated in the ERNs for pulmonary, bone, and renal diseases'.
Dr. Michael Wright, Deputy Medical Director, Newcastle Hospitals
Active disease areas of research
The visual below shows the different disease areas in which our researchers and clinicians are active. To better understand the work we do across all rare disease areas, see Our Research.