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Engagement showcase

Find out more about some of the engagement activities we're involved with.

Thank you again for your support on this work, I know the continued engagement with the panel will be significant.

Dr Matthew Cooper

Tilly Hale carer research panel

Matt Cooper, Hamde Nazar, Charlotte Richardson, and Laura Lindsay received a Tilly Hale award in 2024 to include more public members in research. The team is part of the National Institute for Health and Care Research (NIHR) Newcastle Patient Safety Research Collaborative (PSRC) and the School of Pharmacy at Newcastle University. The award supports a research group of informal/unpaid carers who meet regularly to set the research agenda and priorities for the team.

This is different from usual public engagement, as there is not one project or idea that the panel are supporting. Instead, the panel are working with Matt and the team to identify where more work needs to be done and how we can better support carers. The panel supports research and develops ideas and approaches to improving understanding of the impact of caregiving on the carer and the person they support.

The panel meets four times per year and has had some great discussions over the last series of meetings. In the first meeting, the panel met in person and it was great to have everyone together to discuss ideas. The panel is currently working with an artist to develop a visual art piece answering the question, what does being a carer mean to me? This artwork will be used as a conversation aid for carers to use when talking to healthcare professionals or services and help inform students about what the role of a carer can mean for an individual. The panel are working on capturing the information and imagery and looking forward to having the final piece by the end of 2024.