Staff Profile
Becca Leary
Senior Project Manager - conect4children
- Email: becca.leary@ncl.ac.uk
- Telephone: 18839
- Address: Translational and Clinical Research Institute
Faculty of Medical Sciences
Newcastle University
International Centre for Life
NE1 3BZ
Based at the John Walton Muscular Dystrophy Research Centre, I am the Connect4Children (c4c) Project Manager with responsibility for managing all aspects of Newcastle's contribution to the consortium. c4c is an IMI2 funded project tasked with bringing better medicines to babies, children and young people through the establishment of a pan-European Clinical Trial Network.
Newcastle University is the co-lead on two work packages of the project and I am a member of the Project Steering Committee and chair of the Communication and Dissemination Board.. In the data work package, we are working to harmonise and standardise data collected in paediatric clinical trials through introducing data standards, shared terminology and implementing the FAIR data principles within the project. In the education work package we are leading on developing scientific short courses aimed at personnel who are delivering paediatric clinical trials.
MMB8036 : Therapy Development for Rare Diseases: the neuromuscular paradigm
- Verhaart IEC, Robertson A, Leary R, McMacken G, Konig K, Kirschner J, Jones CC, Cook SF, Lochmuller H. A multi-source approach to determine SMA incidence and research ready population. Journal of Neurology 2017, 264(7), 1465-1473.
- Leary R, Oyewole A, Bushby K, Aarstma-Rus A. Translational Research in Europe for theAssessment and Treatment for NeuromuscularDisorders (TREAT-NMD). Neuropediatrics 2017, 48, 211-220.
- Turner MA, Hildebrand H, Fernandes RM, de Wildt SN, Mahler F, Hankard R, Leary R, Bonifazi F, Nobels P, Cheng K, Attar S, Rossi P, Rocchi F, Claverol J, Nafria B, Giaquinto C. The conect4children (c4c) Consortium: Potential for Improving European Clinical Research into Medicines for Children. Pharmaceutical Medicine 2021, 35, 71-79.
- Amadi C, Leary R, Palmeri A, Hedley V, Sen A, Siddiqui RQ, Kalra D, Straub V. How Can a Clinical Data Modelling Tool Be Used to Represent Data Items of Relevance to Paediatric Clinical Trials? Learning from the Conect4children (c4c) Consortium. Applied Sciences 2022, 12(3), 1604.