Staff Profile
Emma Heslop
DMD Clinical Research Hub Manager
- Email: emma.heslop@ncl.ac.uk
- Telephone: +44 (0) 191 241 8621
- Address: Newcastle University
International Centre for Life
Central Parkway
Newcastle upon Tyne
NE1 3BZ
Publications
- Porter B, Cammish P, Orrell R, Heslop E, Marini-Bettolo C. The UK FSHD Patient Registry: A Key Tool in the Facilitation of Clinical Research. In: 12th UK Neuromuscular Translational Research Conference. 2019, Newcastle, UK.
- Porter B, Cammish P, Turner C, Heslop E, Marini-Bettolo C. The UK Myotonic Dystrophy Patient Registry: A Key Tool in the Facilitation of Clinical Research. In: 12th UK Neuromuscular Translational Research Conference. 2019, Newcastle, UK.
- Heslop E, Csimma C, Straub V, McCall J, Nagaraju K, Wagner KR, Caizergues D, Korinthenberg R, Flanigan KM, Kaufmann P, McNeil E, Mendell J, Hesterlee S, Wells DJ, Bushby K. The TREAT-NMD advisory committee for therapeutics (TACT): an innovative de-risking model to foster orphan drug development. Orphanet Journal of Rare Diseases 2015, 10, 49.
- Wells D, Heslop E, Csimma C, Straub V, McCall J, Nagaraju K, Wagner K, Caizergues D, Korinthenberg R, Flanigan K, Mendell J, Kelly M, Kaufmann P, McNeil E, Robertson A, Johnston L, Bushby K. The TREAT-NMD Advisory Committee for Therapeutics (TACT): An innovative de-risking model to foster orphan drug development. In: 20th International Congress of the World Muscle Society. 2015, Brighton, UK: Elsevier.
- Thompson R, Johnston L, Taruscio D, Monaco L, Beroud C, Gut IG, Hansson MG, 't Hoen PBA, Patrinos GP, Dawkins H, Ensini M, Zatloukal K, Koubi D, Heslop E, Paschall JE, Posada M, Robinson PN, Bushby K, Lochmuller H. RD-Connect: An Integrated Platform Connecting Databases, Registries, Biobanks and Clinical Bioinformatics for Rare Disease Research. Journal of General Internal Medicine 2014, 29(3), 780-787.
- McCormack P, Woods S, Aartsma-Rus A, Hagger L, Herczegfalvi A, Heslop E, Irwin J, Kirschner J, Moeschen P, Muntoni F, Ouillade M-C, Rahbek J, Rehmann-Sutter C, Rouault F, Sejersen T, Vroom E, Straub V, Bushby K, Ferlini A. Guidance in social and ethical issues related to clinical, diagnostic care and novel therapies for hereditary neuromuscular rare diseases: "translating" the translational. 2013. Available at: http://dx.doi.org/10.1371/currents.md.f90b49429fa814bd26c5b22b13d773ec.