Staff Profile

Introduction

My research background is in healthcare quality improvement using both clinical audit and comparative quality indicators. The main focus of all my work has been patients experience of healthcare interventions in a variety of settings. Alongside this qualitative work is my developing interest in Patient and Public involvement in research, how we can encourage full and active participation and how we can evaluate its impact.

My PhD, which was funded by the Medical Research Council focussed on shared decision making (SDM). The PhD identified what decisions women made during pregnancy and labour and how they could best be supported in the decision making process.

A secondment opportunity as the Shared Decision Making Programme Lead for the Newcastle upon Tyne NHS Foundation Hospitals Trust, was concerned with implementing Shared Decision Making across the organisation, providing a resource for both patients and staff.

My recent work has involved working with researchers to ensure patients and public have a voice when developing research proposals. Through this work I chair the regional PPI network - Creating Connections which enables a sharing of good practice and development of collaborative working in the field.

Although the majority of my recent work has used a qualitative approach, I am also experienced quantitative researcher.

I am a member of 

• Qualitative Methods Special Interest Group
• Public and Patient Involvement Special interest group

Current Role

Principal Research Associate and Strategic Lead for Patient and Public Involvement and EDI, NIHR Research Support Service, hosted by Newcastle University and Partners

Co-Chair of the Qualitative Special Interest Group

Qualifications

2011 - PhD, University of Newcastle

2000 - MSc Health Sciences (Public Health ), University of Newcastle

1990 - BA(Hons) University of Liverpool

Previous Positions

SDM Programme Lead - Newcastle upon Tyne NHS Foundation Hospitals Trust

MRC Research Fellow - Decision making in pregnancy - the exaple of pain relief in labour

UK Quality Indicator Project (QIP) co-ordinator (Dept of Population and Health Sciences)

Research Interests

The main focus of my work is on patient experience and involvement in research, in a variety of settings including transplant, shared decision making and stroke medicine.

Decision making in health care, in areas where the decision and the action are separated by time or place. I have an interest in how patients make decisions, how their values affect their choices and what we can do to support them in the decision making process.

I am also interested in the impact of context on decision making in healthcare. The setting, the urgency, the involvement of others, all play an important role in the decision made which is not yet fully understood.

I am interested in how we can use comparative quality indicators to assess the quality of acute care 

Current Work

Research methodologist and Strategic Lead for PPI and EDI for NIHR RSS

Promoting Effective And Rapid Stroke Care (PEARS) - Starting May 2014

Previous Work 

NIHR Health Technology Assessment DEVELOP UK A study of donor ex-vivo lung perfusion in UK Lung Transplantation - Research Associate

Pre-Conception Care for Diabetic Women.

Esteem Indicators

I was invited as commentator for the Drug and Therapeutics Bulletin " An Introduction to Patient Decision Aids", August 2012

Peer Reviewer - Journal Articles: NIHR Journals Library, British Journal of Obstetrics and Gynaecology, Patient Education and Couselling, Archives of Disease in Childhood, Health Expectations

Panel Member - Teaching and Research Fellow awards, Northumbria Healthcare NHS trust

Abstract Reviewer for International Shared Decision Making Conference

Undergraduate Teaching

Public Health Tutor and Rotation co-ordinator for 3rd year MBBS students on the EJR Public Health.

Tutor on 'Medicine in the Community' course for Stage 1 and 2, MBBS students

Postgraduate Teaching

Delivered sessions on the MSc in Health Sciences in the IHS in the quality of care and qualitative methods modules.

Delivered sessions on telephone interviewing on 

Public and patient Involvement sessions on the IHS MSc course and MSC in Clinical Research

Post graduate Supervision 

Previous

2013: Amelia Woolley, MSc Health Services Research

2014: Michelle Bardgett, Masters in Clinical Research

2019: Martin Walls and Rawand Jarrar

Curent

2024: Paul Macallion

• Articles

  • Fisher AJ, Carby M, Thompson R, Parmar J, Alaloul M, Santhanakrishnan K, Hancock H, Wason J, Grayling M, Hasenfuss J, Lally J, Gennery A, Exley C, Lordan J, Bradley P, Flinn A, Bardgett M, White M, Goudie N, Phillipson J, Kershaw A, Smith H, Russell S, Vale L, Chadwick T, Bryant A, Bevin-Nicholls A, Frisby L, Johnson R. Extracorporeal Photopheresis (ECP) in the Treatment of Chronic Lung Allograft Dysfunction (CLAD): a prospective, multicentre, open-label, randomised controlled trial studying the addition of ECP to standard care in the treatment of bilateral lung transplant patients with CLAD (E-CLAD UK). BMJ Open Respiratory Research 2024, 11(1), e001995.
  • Parbery-Clark C, Nicholls R, McSweeney L, Sowden S, Lally J. Coproduction of a resource sharing public views of health inequalities: An example of inclusive public and patient involvement and engagement. Health Expectations 2024, 27(1), e13860.
  • Harrison S, Lawrence J, Suri S, Rapley T, Loughran K, Edwards J, Roberts L, Martin D, Lally JE. Online comic-based art workshops as an innovative public involvment and engagement approach for people with chronic breathlessness. Research Involvement and Engagement 2023, 9.
  • Johnson EE, Lally JE, Farnworth A, Pearson F. Involving people with a lived experience when developing a proposal for Health Technology Assessment research of nonsurgical treatments for pelvic organ prolapse: Process and reflections. Health Expectations 2023, 26(3), 1127-1136.
  • Price CI, White P, Balami J, Bhattarai N, Coughlan D, Exley C, Flynn D, Halvorsrud K, Lally J, McMeekin P, Shaw L, Snooks H, Vale L, Watkins A, Ford GA. Improving emergency treatment for patients with acute stroke: the PEARS research programme, including the PASTA cluster RCT. Programme Grants for Applied Research 2022, 10(4).
  • Trenaman L, Jansen J, Blumenthal J, Körner M, Lally J, Matlock DD, Perestelo-Perez L, Ropka M, Stirling C, Valentine K, Vo H, Wills CE, Thomson R, Sepucha K. Are We Improving? Update and Critical Appraisal of the Reporting of Decision Process and Quality Measures in Trials Evaluating Patient Decision Aids. Medical Decision Making 2021, 41(7), 954-959.
  • Lally J, Vaittinen A, McClelland G, Price C, Shaw L, Ford GA, Flynn D, Exley C. Paramedic experiences of using an enhanced stroke assessment during cluster randomised controlled trial; a qualitatve thematic analysis. Emergency Medicine Journal 2020, 37(8), 480-485.
  • Price CI, Shaw L, Islam S, Javanbakht M, Watkins A, McMeekin P, Snooks S, Flynn D, Francis R, Lakey R, Sutcliffe L, McClelland G, Lally J, Exley C, Rodgers H, Russell I, Vale L, Ford GA. Effect of an Enhanced Paramedic Acute Stroke Treatment Assessment (PASTA) on Thrombolysis Delivery During Emergency Stroke Care: A Cluster Randomised Clinical Trial. JAMA Neurology 2020, 77(7), 840-848.
  • Price CI, Shaw L, Dodd P, Exley C, Flynn D, Francis R, Islam S, Javanbakht M, Lakey R, Lally J, McClelland G, McMeekin P, Rodgers H, Snooks H, Sutcliffe L, Tyrell P, Vale L, Watkins A, Ford GA. Paramedic Acute Stroke Treatment Assessment (PASTA): study protocol for a randomised controlled trial. Trials 2019, 20, 121.
  • Flynn D, Francis R, Robalino S, Lally J, Snooks H, Rodgers H, McClelland G, Ford GA, Price C. A review of enhanced paramedic roles during and after hospital handover of stroke, myocardial infarction and trauma patients. BMC Emergency Medicine 2017, 17, 5.
  • Lally J, McClelland G, Exley C, Ford G, Price C. Stakeholder Engagement In The Design Of A Novel Pre-hospital Acute Stroke Assessment. Emergency Medicine 2016, 33(9), e9-e10.
  • Bardgett M, Lally J, Malviya AJ, Deehan D. Return to work after knee replacement: A qualitative study of patient experiences. BMJ Open 2016, 6(2), e007912.
  • Bardgett M, Lally J, Malviya A, Kleim B, Deehan D. Patient-reported factors influencing return to work after joint replacement. Occupational Medicine 2016, 66(3), 215-221.
  • Bardgett M, Lally J, Malviya AJ, Kleim B, Deehan DJ. Patient reported factors influencing return to work after joint replacement – A Qualitative Analysis. Occupational Medicine 2016, 66(3), 215-221.
  • Fisher A, Andreasson A, Chrysos A, Lally J, Mamasoula C, Exley C, Wilkinson J, Qian J, Watson G, Lewington O, Chadwick T, McColl E, Pearce M, Mann K, McMeekin N, Vale L, Tsui S, Yonan N, Simon A, Marczin N, Mascaro J, Dark J. An observational study of Donor Ex Vivo Lung Perfusion in UK Lung Transplantation : DEVELOP-UK. Health Technology Assessment 2016, 20(85).
  • Lally J, Thomson RG, MacPhail S, Exley C. Pain relief in labour: a qualitative study to determine how to support women to make decisions about pain relief in labour. BMC Pregnancy and Childbirth 2014, 14, 6.
  • Sepucha KR, Matlock DD, Wills CE, Ropka M, Joseph-Williams N, Stacey D, Ng CJ, Levin C, Lally J, Borkhoff CM, Thomson R. "It's valid and reliable" is not enough: Critical appraisal of reporting of measures in trials evaluating patient decision aids. Medical Decision Making 2014, 34(5), 560-566.
  • Sepucha KR, Borkhoff CM, Lally J, Levin CA, Matlock D, Ng CJ, Ropka ME, Stacey D, Joseph-Williams N, Wills CE, Thomson R. Establishing the effectiveness of patient decision aids: key constructs and measurement instruments. BMC Medical Informatics and Decision Making 2013, 13(Suppl. 2), S12.
  • Lally J, Tullo E. Engaging older people in decisions about their healthcare: the case for shared decision making. Reviews in Clinical Gerontology 2012, 22(2), 99.
  • Lally JE. Nothing about me without me. Nursing Times 2011, 107(34), 14-16.
  • Lally JE, Thomson RG, Exley C, Macphail S. Shared decision making about pain management in labour: expectations and reality. Archives of Disease Childhood - Fetal and Neonatal 2010, 95((suppl 1)), Fa80.
  • Lally JE, Murtagh MJ, Macphail S, Thomson RG. More in hope than expectation: A systematic review of women's expectations and experience of pain relief in labour. BMC Medicine 2008, 6, 7.
  • Burges Watson D, Murtagh MJ, Lally JE, Thomson RG, McPhail S. Flexible therapeutic landscapes of labour and the place of pain relief. Health and Place 2007, 13(4), 865-876.
  • Fischbacher CM, Lally JE. Improving the quality of communicable disease control: the example of meningococcal disease. Communicable Disease and Public Health 2001, 4(4), 268-272.
  • R. Thomson and J. Lally. External evaluation of health care in Italy - Comment. Quality in Health Care 1998, 7, 168-169.
  • R. Thomson and J. Lally. Clinical indicators: do we know what we're doing?. Quality in Health Care 1998, 7, 122-122.

• Book Chapter

  • Lally, J.E. & Thomson, R.G. Is indicator use for quality improvement and performance measurement compatible?. In: H. Davies, M. Tavakoli, M. Malek & A.R, ed. Managing quality: strategic issues in Health care management. Ashgate publishing Ltd, 1999, pp.199-213.

• Conference Proceedings (inc. Abstracts)

  • Jarrar R, Chadwick T, Lally J, Thomson R, Wilkinson C, Price C. Temporal changes in anticoagulant prescribing and atrial fibrillation: results of interrupted time-series analysis of openly available routine data in England. In: Health Services Research and Pharmacy Practice Conference. 2022, University of Bath: Oxford University Press.
  • Johnson E, Pearson F, Lally J, Farnworth A. OP14 Involving People With A Lived Experience When Developing A Proposed Health Technology Assessment Of Pelvic Organ Prolapse Treatments. In: HTAi 2022. 2022, Utrecht, The Netherlands: Cambridge University Press.
  • Jarrar R, Wilkinson C, Chadwick T, Lally J, Thomson R, Price C. Factors influencing oral anticoagulant prescribing decisions for patients with atrial fibrillation: a systematic review of qualitative and quantitative evidence. In: Health Services Research and Pharmacy Practice Conference. 2021, Online: Oxford University Press.
  • Lally J, Flynn D, Ford G, Price C, Exley C. Barriers and facilitators to further development of the paramedic role during assessment of suspected stroke patients. In: UK Stroke Forum 2015 Conference. 2015, Liverpool, UK: John Wiley & Sons, Inc.
  • Bell R, Burke W, Lally J, Heslehurst N, Rankin J. Experiences of preparation for pregnancy in women with pre-gestational diabetes: a systematic review of qualitative studies. In: Diabetes UK Professional Conference 2013. 2013, Manchester: Wiley-Blackwell Publishing Ltd.
  • Lally J, Murtagh M, Thomson R, MacPhail S. Women's decision-making about pain relief in labour. In: Society for Social Medicine 52nd Annual Scientific Meeting. 2008, Southampton: Journal of Epidemiology & Community Health, BMJ Group.
  • Lally J, Murtagh M, Thomson RG, MacPhail S. Women's decision making regarding pain relief in labour. In: 3rd International Shared Decision Making Conference. 2005, Ottawa, Canada: University of Ottawa.
  • Lally J, Murtagh M, Thomson RG, MacPhail S. Women’s decision making about pain in labour. In: UK Public Health Forum. 2005, Gateshead.

• Editorials

  • Thomson RG, Lally J. Performance management at the crossroads in the NHS: Don't go into the red. Quality in Health Care 2000, 9(4), 201-202.
  • Thomson R, Lally J. External evaluation of health care in Italy - Comment. QUALITY IN HEALTH CARE 1998, 7(3), 168-169.

• Letter

  • Harrison SL, Lawrence J, Suri S, Rapley T, Loughran K, Edwards J, Roberts L, Martin D, Lally JE. Online comic-based art workshops as an innovative patient and public involvement and engagement approach for people with chronic breathlessness. Research Involvement and Engagement 2023, 9(1), 19.

• Online Publication

  • Sepucha K, Thomson R, Borkhoff C, Lally J, Levin CA, Matlock DD, NG CJ, Ropka M, Stacey D, Williams NJ, Wills CE. Chapter L: Establishing The Effectiveness. IPDAS Collaboration, 2012. Available at: http://www.ipdas.ohri.ca/IPDAS-Chapter-L.pdf.

• Reports

  • Wearn A, Kaner E, Ramsay S, Aquino MRJ, Alderson H, Cheetham M, Shenton F, Lally J, Anderson E, Rook V, Palfreyman L, Bartle V. Evaluating process and outcomes of public involvement in applied health and social care research: a rapid systematic review. London: National Institute for Health and Care Research, 2022. PROSPERO 2022 CRD42022310210.
  • Stobbart L, O'Donnell A, Akor W, Albani V, Brown H, Craig D, Fattakhova G, Harrison S, Kaner E, Kirkman S, Lally J, Little M, Mott D, Rice S, Robinson T, Scott J, Shaw C, Spencer L, Tandogdu Z, Vaittinen A, Watson N, Whalley E, Vale L. Phase Two of the NHS 111 Learning and Development Pilot Programme: Final Report. NHS England, 2015.

• Review

  • Thomson R, Taber S, Lally J, Kazandjian V. UK Quality Indicator Project® (UK QIP) and the UK independent health care sector: A new development. International Journal for Quality in Health Care 2004, 16(1), i51-i56.